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PRIVACY CONFIDENTIALITY AND HEALTH RESEARCH

W. Lowrance William

Oprawa:
MIĘKKA

Wydawca:
Cambridge University Press

Data premiery:
2013-12-05

ISBN:
9781107696631

99,70 PLN
Wysyłamy w 35 dni

Opis produktu

Dr William Lowrance is a consultant in health research policy and ethics based in La Grande Motte France. He has been a faculty member or fellow teaching and conducting research on health policy environmental policy and risk decision making at Harvard Stanford and Rockefeller Universities. He has served as the director of the Life Sciences and Public Policy Program of Rockefeller University and as the executive director of the International Medical Benefit/Risk Foundation headquartered in Geneva. His books include Of Acceptable Risk: Science and the Determination of Safety and Modern Science and Human Values. In recent years he has focused on the issues of privacy and confidentiality in health research and he chaired the advisory committee that drafted the Ethics and Governance Framework of UK Biobank.Examines how privacy confidentiality consent identifiability safeguards and data sharing affect the pursuit of health research for the common good.New technologies and increased data sharing have a great potential to advance health research but our current safeguards for privacy confidentiality and consent may no longer be sufficient. In this book William Lowrance draws on examples from a variety of jurisdictions to suggest ways forward.New technologies and increased data sharing have a great potential to advance health research but our current safeguards for privacy confidentiality and consent may no longer be sufficient. In this book William Lowrance draws on examples from a variety of jurisdictions to suggest ways forward.The potential of the ehealth revolution increased data sharing database linking biobanks and new techniques such as geolocation and genomics to advance human health is immense. For the full potential to be realized though privacy and confidentiality will have to be dealt with carefully. Problematically many conventional approaches to such pivotal matters as consent identifiability and safeguarding and security are inadequate. In many places research is impeded by an overgrown thicket of laws regulations guidance and governance. The challenges are being heightened by the increasing use of biospecimens and by the globalization of research in a world that has not globalized privacy protection. Drawing on examples from many developed countries and legal jurisdictions the book critiques the issues summarizes various ethics policy and legal positions (and revisions underway) describes innovative solutions provides extensive references and suggests ways forward.1. Introduction: 2. Data biospecimens and research: 3. Privacy confidentiality safeguards: 4. Broad privacy and the data protection regimes: 5. Health care public health and research regimes: 6. Consent: 7. Identifiability and personspecific data: 8. Genetics and genomics: 9. Safeguards and responsibilities: 10. Data sharing access and transfer: 11. Ways forward.Privacy Confidentiality and Health Research by William W. Lowrance has appeared like manna from heaven... This book is

Data Publikacji: 2013-12-05
Wymiary: 229 mm 152 mm 11 mm 280 gr

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